Best Practice Guidance
Human Interaction with Technology in Dementia

Guidance

People with dementia are active on social media platforms. For this reason, researchers recruiting participants for their studies on the development, testing or evaluation of psychosocial technological interventions should consider advertising the study details on different social media platforms.

Explanation and Examples:

Devices using information and communication technology (ICT) are increasingly being used by older people, including people with dementia. We conducted an online survey with 143 people with dementia to explore if and how they use social media. Results from the survey revealed that more than half of the participants actively use social media. More people with young-onset dementia were active on social media, though a large proportion of people with dementia who were 65 years and older were actively using social media too. In addition, a large proportion of the participants themselves were recruited through Twitter and Facebook. Our results suggest that people with dementia can be reached through social media, which is of relevance for researchers looking to recruit participants for the development, testing or evaluation of psychosocial technological interventions.

Guidance

Social media have the potential to be an additional supportive medium for people with dementia. It is recommended to signpost individuals with dementia to social media platforms to leverage their potential.

Explanation and Examples:

We conducted an online survey with 143 people with dementia to explore how they used social media platforms and what kind of information they shared on their accounts. Our findings show that people with dementia use various different social media platforms like Facebook or Twitter to raise awareness, give and receive support, and to share their experiences of living with dementia. As subsequent older generations will use technology more and, consequently, will become more tech-savvy, social media platforms will become more relevant for this population. As post-diagnostic support is often lacking, social media platforms can be used as medium that is widely available and easily accessible to offer people with dementia additional (peer) support. Examples of these platforms include online forums like Talking Point by the Alzheimer’s Society UK, Facebook groups run by charities or dementia organisations, or Twitter where many people with dementia are active. Signposting people with dementia to these social media platforms is therefore recommended.

Guidance

See recommendation no. 3.3.5.5