Social media have the potential to be an additional supportive medium for people with dementia. It is recommended to signpost individuals with dementia to social media platforms to leverage their potential.
Explanation and Examples:
We conducted an online survey with 143 people with dementia to explore how they used social media platforms and what kind of information they shared on their accounts. Our findings show that people with dementia use various different social media platforms like Facebook or Twitter to raise awareness, give and receive support, and to share their experiences of living with dementia. As subsequent older generations will use technology more and, consequently, will become more tech-savvy, social media platforms will become more relevant for this population. As post-diagnostic support is often lacking, social media platforms can be used as medium that is widely available and easily accessible to offer people with dementia additional (peer) support. Examples of these platforms include online forums like Talking Point by the Alzheimer’s Society UK, Facebook groups run by charities or dementia organisations, or Twitter where many people with dementia are active. Signposting people with dementia to these social media platforms is therefore recommended.
ThemesInformation Communication Technologies (ICT) People with dementia Social media Support Young Onset Dementia
Target groupsClinicians Dementia organisations People living with dementia Professional carers, clinicians
Type of evidence
Cross-sectional online survey with 143 people with dementia
Kohl, G., Koh, W.Q., Scior, K., & Charlesworth, G. (2023). Social media use among younger and older people with dementia: An internet-mediated mixed-methods study. Manuscript submitted to Computers in Human Behavior.